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Happy Birthday Silva !!
06-11-2014, 03:23 PM,
#1
Happy Birthday Silva !!
It's the year of the horse Silva. Although you've been confronted with immense challenges… I hope your birthday and the rest of your year bring you all kinds of marvelous surprises and serious bliss. [Image: love0049.gif] [Image: jumping0002.gif][Image: party0020.gif]

[Image: Silva2014.jpg]
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06-11-2014, 05:56 PM,
#2
RE: Happy Birthday Silva !!
Greet002
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06-11-2014, 07:13 PM,
#3
RE: Happy Birthday Silva !!
April said it very well.
Best wishes and hopes to you on your day.
“Today’s scientists have substituted mathematics for experiments, and they wander off through equation after
equation, and eventually build a structure which has no relation to reality. ” -Nikola Tesla

"When the power of love overcomes the love of power the world will know peace." -Jimi Hendrix
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06-11-2014, 08:28 PM,
#4
RE: Happy Birthday Silva !!
Thanks guys!
And a drawing from ConCen's resident artiste, thanks April! Just checked into this hotel, overlooking the Capitol. Not a place I wanted to be on my birthday but none the less. Going to be at this conference the rest of the week trying to learn what we can about SMA. Thanks for the kind words and Birthday wishes.
Just found out Jackson was fit in, if we choose, to take part in a clinical trial for a new drug that's supposed to help babies with SMA. It's all real new and experimental so I'm real cautious about what we decide but it's looking better. At least for the foreseeable future.
Apparently the trials were already booked and full but the head Dr. at Columbia pushed and pushed, wouldn't take no for an answer. I think they saw how strong he is and his condition is better than most babies with this disease. So he got Jackson in! Now it's up to his mom and I to suss out all the details and make a decision.
Talk to u soon guys, drink a tall cold one for me and smoke a fat one for me.
Later
"Listen to everyone, read everything, believe nothing unless you can prove it in your own research"
~William Cooper

DTTNWO!
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06-11-2014, 10:17 PM,
#5
RE: Happy Birthday Silva !!
SiLVa Wrote:Talk to u soon guys, drink a tall cold one for me and smoke a fat one for me.

Will be on the weekend, happy birthday!
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06-12-2014, 12:56 AM, (This post was last modified: 06-12-2014, 03:19 AM by rockingtheboat.)
#6
RE: Happy Birthday Silva !!
@ Silva : I won't wish you "a happy birthday", for fear of becoming just like everybody else, doing and saying things just because it is the custom while having no clue what it really means (am I hearing the herd stomping ?).

Regarding the trial you are going through right now because of your son's condition, I highly recommend the following movie for you and your wife to watch :

http://www.amazon.com/gp/aw/d/B0001CNRAM/

edit, added : http://en.m.wikipedia.org/wiki/Augusto_and_Michaela_Odone
http://en.m.wikipedia.org/wiki/Lorenzo%27s_Oil

I am NOT giving you any advice, but if I were you, I would roll my sleeves up and become my own medical researcher (again, watch that movie please). I would use Google Scholar (http://scholar.google.com/) and look into DMSO Quercetin Ubiquinol, B12...etc. I had enough experiences with hospitals and doctors to conclude that it is all about the $$$$$, not about alleviating human suffering. Of course there are a few exceptions here and there but very often they have their hands tied up by the official medical tyranny.

Best of luck.
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